tag:blogger.com,1999:blog-8390909237436203417.post6773735699637150881..comments2024-03-28T04:50:21.907-07:00Comments on Forevermissvanity - A UK Lifestyle Blogger : My Invisible Illness: Auto Immune Arthritis Forever Miss Vanityhttp://www.blogger.com/profile/10238945190720794362noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8390909237436203417.post-77261625703665244522014-06-25T13:16:54.969-07:002014-06-25T13:16:54.969-07:00RA is a git. I hate it so much but I'm so glad...RA is a git. I hate it so much but I'm so glad you haven't let it define you :) <br />Have you checked out Arthur's Place (http://arthursplace.co.uk/) it's a great website for young patient's with RA that I have been involved in setting up- do check it out!<br />Keep going, it always takes time but I'm 26 (diagnosed with RA at 18) and have gone on to have all sorts of fun (+ am about to get my doctorate!!) Don't let it get in the way xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8390909237436203417.post-79587336498300261142014-06-17T11:39:28.046-07:002014-06-17T11:39:28.046-07:00Reading this story really struck a chord with me. ...Reading this story really struck a chord with me. Like you I suffer from an invisible illness called Neurocardiogenic syncope. Most days I feel like I have been hit by a bus/ I am experiencing the worst hangover ever, only without the alcohol. suffering from exhaustion and dizziness and everything else in between. I occasionally faint with symptoms similar to fits, but for 80% of the year I look just about the same as any 24 year old girl. <br /><br />I myself struggled with the doctors believing me, being challenged numerous times and being told It was just hormones and part of growing up, until like yourself one doctor believed me and I am on steroids to control it for the foreseeable future. <br /><br />Thanks for sharing your story, it's nice to know you're not alone sometimes when you're struggling with an illness that so many others fail to see. <br /><br />Xxx Betty Janehttps://www.blogger.com/profile/00535267862607946536noreply@blogger.comtag:blogger.com,1999:blog-8390909237436203417.post-4454637252625268602014-06-17T11:27:01.151-07:002014-06-17T11:27:01.151-07:00Hey Jessica! I just wanted to say that I was trul...Hey Jessica! I just wanted to say that I was truly moved by your article. As a fellow RA sufferer I can identify with everything that you said and have been through. I hope your treatment kicks in soon and you can continue with your quest for all things glamorous! You are a girl after my heart and thanks for supporting NRAS and the amazing work they do too.<br />Take care girl! XAnonymoushttps://www.blogger.com/profile/13535905237887968275noreply@blogger.comtag:blogger.com,1999:blog-8390909237436203417.post-17842107882166653452014-06-16T14:10:22.052-07:002014-06-16T14:10:22.052-07:00Sorry to hear you've had such a rollercoaster....Sorry to hear you've had such a rollercoaster. Ive worked with people with RA before and it's so hard to see they are limited in what they can do. <br />Sending my love to you xx<br /><br />www.nicolabishopx.com Anonymoushttps://www.blogger.com/profile/16345289850429569357noreply@blogger.com